Web Directory > NZ > Health > Diseases and Conditions

• ACHIEVE
  Site includes a code of practice of NZ tertiary institutions to create a non disabling environment for students with impairments.
  
  
• Action on Smoking and Health : ASH
  ASH NZ aims to reduce smoking in New Zealand. The site primarily contains information on smoking and the tobacco industry in New Zealand, including research and legislation. There is also some information from abroad, and on the effects of smoking in general. There is a section for those who wish to give up smoking.
  
  
• ADHD.org.nz : New Zealand's ADHD online support group
  Information on diagnoses, treatments and support services for people with ADHD.
  
  
• AIDS - New Zealand
  AIDS - New Zealand is the Ministry of Health's twice-yearly newsletter giving an up-to-date picture of the NZ situation concerning HIV/AIDS. Each issue is available in HTML and PDF formats.
  
  
• Al-anon, Alateen
  Organisation established to help families and friends of alcoholics recover from the effects of living with the problem drinking of a relative or friend. Includes Alateen, a recovery program for young people.
  
  
• Alcoholics Anonymous Aotearoa N.Z.
  This is the homepage of the New Zealand General Service Office of Alcoholics Anonymous in New Zealand. On behalf of the A.A. groups in New Zealand the GSO publishes basic information about A.A. and publishes a list of meetings nationally.
  
  
• Allergy New Zealand
  Allergy New Zealand is a voluntary not-for-profit organization supported by a medical and scientific panel of New Zealand's leading Allergy and Immunology specialists. Links to international allergy websites.
  
  
• Alzheimers NZ, National Office and Resource Centre
  Information and resources for people with Alzheimers disease and related dementias, and their caregivers.
  
  
• Ambury Park Centre for Riding Therapy : a rehabiliation centre with a difference
  Centre which uses horses to help improve the lives of young people with physical, emotional, and intellectual disabilities. Site contains information about events, therapy rides, the horses, full time education options, vocational training, and volunteering. Includes newsletter and annual report.
  
  
• Amputees Federation of New Zealand Inc.
  Provides support for amputees including information about sport and recreation, benefits and assistance, employment and personal care.
  
  
• Arachnoiditis Sufferers Action and Monitoring Society (ASAMS) New Zealand Inc.
  ASAMS was formed out of the need for a support group for the growing numbers of people suffering from arachnoiditis or chronic pain syndrome. Features: a bulletin board, a chat room, information, objectives, developments, support and links to related sites.
  
  
• Arthritis New Zealand : enabling a better quality of life = Kaiponapona Aotearoa : te whakapiki i te kounga ora
  About the national voluntary organisation. Site also has information the different types of arthritis and their treatment and online newsletter.
  
  
• Associated NZ Myalgic Encephalopathy Society
  ANZMES web site provides information about chronic fatigue syndrome (CFS - also known as Tapanui flu, chronic fatigue Immune dysfunction syndrome (CFIDS) and myalgic encephalomyelitis (ME)). The site also includes pages on research, psychiatry and CFS, and youth.
  
  
• Association for Supported Employment in New Zealand
  About ASENZ, which aims to provide supported employment services for people with disabilities, through information, networking research and policy advocacy. Site has directory of supported employment providers throughout New Zealand; job vacanies; news and events information.
  
  
• Association of Blind Citizens of New Zealand Inc.
  Information about ABC NZ and advocacy issues. Also includes full-text issues of the newsletter Focus.
  
  
• Asthma : The Asthma and Respiratory Foundation of New Zealand (Inc.) = Te Taumatua Huango, Mate Ha Aotearoa
  The Asthma and Respiratory Foundation of New Zealand (Inc.) is a national non-government organisation which aims to help people with asthma and respiratory conditions. They feature: general asthma information, a kids page, research results, local support and resources.
  
  
• Attitude disabilitytv.com
  Website for Attitude TV a television magazine series on TvOne designed to reflect the lifestyle, issues and interests of people living with or caring for a person with a disability. Includes access to past Attitude TV programmes, case histories of disabled people living rewarding lives, with information on awards and a directory of resources.
  
  
• Australasian Society of Clinical Immunology and Allergy : ASCIA
  The ASCIA website is mostly for members, but it does have patient information links and news about patient support groups.
  
  
• Australia and New Zealand Dialysis and Transplant Registry (ANZDATA)
  ANZDATA is the Australia and New Zealand Dialysis and Transplant Registry. The Registry records the incidence, prevalence and outcome of dialysis and transplant treatment for patients with end stage renal failure. The site contains the annual report, updates and contact information. There are links to allied sites both domestic and international.
  
  
• Australia and New Zealand Organ Donation Registry (ANZOD)
  The Australia and New Zealand Organ Donation Registry (ANZOD) collects a wide range of statistics that relate to organ donation. These are available in the annual report and update sections.
  
  
• Australian and New Zealand Society of Nephrology : ANZSN
  The ANZSN website has information about: the society's activities, continuing education, trials, scientific meetings and links to other renal sites.
  
  
• Australian and New Zealand Society of Respiratory Science Inc.
  The Australian and New Zealand Society of Respiratory Science (ANZSRS) Inc. was formed in 1980 to serve the professional needs of scientists and technologists employed in clinical respiratory function laboratories. The site has general information on: membership, activities, conference, continuing education and links to other sites.
  
  
• Autism Intervention Trust
  Includes information on autism, Applied Behaviour Analysis (ABA) therapy, holiday programmes, and resources available from the Trust.
  
  
• Autism New Zealand Inc. : including Asperger syndrome and related disorders
  In addition to information about the association and autism, the site includes a directory of branches and access to their newsletters, details of courses and seminars, online articles, publications for sale and library items for hire.
  
  
• Autistic Spectrum Disorder Information Network : ASDIN
  New Zealand-based web portal for people who live with, advocate and provide services for people who have Autistic Spectrum Disorder. Provides links to a variety of resources about autism, including legal, educational, and diagnostic information, research reports, support organisations and services.
  
  
• Back-Up New Zealand : integrated adventures
  A national charity which offers people with disabilities the same outdoor opportunities as people without disabilities. It explains how you can become involved as a participant, buddy or a carer. It also outlines the courses and when they are available to participants and the organisation's avenues for fundraising.
  
  
• BANZ, Boccia Association of New Zealand Inc.
  Boccia is a cross between petanque and indoor bowls adapted for people with cerebral palsy. The site includes a description of the game of boccia, including the rules, and information about people, activities and tournaments.
  
  
• Bites magazine / DPA New Zealand
  Bites is published by Disabled Persons Assembly New Zealand, and gives news and updates on the work of the organisation. Issues are available in full-text.
  
  
• Blind Sailing New Zealand
  The Council is formed by representatives of the Royal New Zealand Foundation for the Blind, the Royal New Zealand Yacht Squadron, blind sailors themselves and supporters. Its foremost aim is to involve more blind and sighted volunteers in all types of sailing experience. The site, which offers a text only option, provides information about the Council, activities, clubs, supporters, successes and the weather. It includes full-text newsletters and a manual.
  
  
• Blind Sport New Zealand : BSNZ
  The site provides information about the organization and about a wide range of sports and blind sports people. Includes event calendar; results/records and standards for IBSA championship events.
  
  
• Body Positive Inc. New Zealand
  About the Auckland group for for people with HIV/AIDS. Includes events calendar; advice about disclosure and patient's rights and links to branches.
  
  
• Brain Injury Association of New Zealand Incorporated
  The Brain Injury Association New Zealand provides information, advocacy and support to people with brain injury and their families/whanau. There are 12 branches around New Zealand with 7 Stewart Centres offering social rehabilitation. The website offers a discussion forum and a link facility to other useful sites.
  
  
• Breast Cancer Aotearoa Coalition : BCAC
  BCAC represents breast cancer related organisations, it aims to make detection and treatment accessible to those affected by breast cancer and provide information about treatment and care. Includes news, events, books and resources, and shared experiences.
  
  
• Burwood Academy of Independent Living
  Organisation supporting rehabilitation with a goal towards independent living for those suffering from physical disabilities.
  
  
• Cancer control in New Zealand : www.moh.govt.nz/cancercontrol
  Formed as part of the New Zealand Cancer Control Strategy 2003. Site covers publications, cancer treatments, waiting times data and questions about therapies.
  
  
• Cancer Genetics Laboratory
  The Cancer Genetics Laboratory is situated in the Department of Biochemistry at the University of Otago. Its research focuses on understanding genetic alterations which lead to the onset of cancer. The site includes the laboratory's history, funding information, current projects, publications, collaborations, and staff, as well as news about cancer, and cancer related links.
  
  
• Cancer Society of New Zealand : Canterbury and West Coast Division
  Information about the Canterbury and West Coast Division, its activities and services, including patient support services, patient accommodation, The John Wilson Information Centre and Library, and health promotion.
  
  
• Cancer Society of New Zealand Wellington Division (Inc.)
  Information about the Wellington Division, its activities and services, including research, prevention and early detection of cancer, support and patient information.
  
  
• Cancer Society
  Describes the various functions of the Cancer Society - fundraising for research, health promotion and support for cancer patients and their carers. Includes own publications for patient information.
  
  
• CanTeen
  The national support network for teenage cancer patients.
  
  
• Canterbury Medical Research Foundation
  A charitable organisation, the Foundation provides financial assistance for research and research facilities. Includes the Canterbury Health Resource community health website for information on the health support groups and individuals of Canterbury region.
  
  
• Carersnetnz : help for New Zealand's 750,000+ family carers and their friends
  To guide carers to sources of help and to give them a forum where they can share their experiences and communicate with each other. The website has been funded by the Ministry for Health as part of a new disabilities service.
  
  
• Caring for Carers Inc. = Te Rōpū Manaaki i nga Kaiawhina
  Community funded group that guides carers to sources of help and to gives a forum where they can share their experiences and communicate with each other.
  
  
• Catapult Employment Services Trust
  Information about the Christchurch based free supported employment service for both employers and jobseekers, which aims to place people with disability impairment or a history of illness into employment.
  
  
• Catapult news / Employment Services Trust
  Newsletter of Catapult Employment Services Trust, a supported employment service for those with disability, impairment or a history of illness. All issues available in full-text.
  
  
• CatWalk Trust
  The CatWalk Spinal Cord Injury Trust is a legally constituted body committed to supporting medical research, providing grants and developing funding to find a cure for spinal cord injuries. Website includes information on spinal cord injuries and the Trust, including its various grant projects, events, newsletter and how to make a donation.
  
  
• CCS Disability Action
  Information about support, services and advocacy available through CCS Disability Action for people with physical disabilities.
  
  
• Central Region Eating Disorder Services : CREDS
  Service provided by the Hutt Valley District Health Board. Information about eating disorders and services that the organisation provides.
  
  
• Cerebral Palsy Society of New Zealand Inc. : freedom and choice
  Information about Cerebral Palsy and links to other sites. The goal of the Society is to maximise the quality of life for people with cerebral palsy and their families by recognizing their inherent ability to achieve. The main links are to Focus, the business and trading arm of the Society; Conductive Education, a holistic programme for children; and, Meca, which focuses on mobility and independence.
  
  
• CF news
  Newsletter of the Cystic Fibrosis Association of NZ. Provides news and information about the Association and cystic fibrosis. Issues available in full-text.
  
  
• Child Cancer Foundation
  Support and information for child cancer patients and their families.
  
  
• Cleft Lip & Palate Support Group
  Provides information and support to assist parents and caregivers of children with cleft lip and/or palate. Site includes real people stories, discussion forum, and links to local support and related sites.
  
  
• Clinical Trials Research Unit
  The CTRU is a research unit within the Faculty of Medical and Health Sciences at the University of Auckland. The unit conducts a research programme investigating the causes, prevention and treatment of cardiovascular disease and other major health problems. The web site provides information about staff, research programmes, education and training activities, and clinical trial services. It includes press releases and articles about CTRU studies and a list of publications.
  
  
• Cloud 9 Children's Foundation New Zealand
  Aim is "Helping you understand children with Asperger's Syndrome and helping them understand you."
  
  
• Coeliac Society of New Zealand (Inc)
  Information about coeliac disease, lists of manufacturers and distributors of gluten free products, details for New Zealand visitors, dining guide and a monthly recipe.
  
  
• Connections
  Newsletter of ADANZ (Alcohol Drug Association New Zealand). Covers issues relating to the provision of treatment for alcohol and drug addictions. All issues available in full-text.
  
  
• Cornea & Contact Lens Society of New Zealand Incorporated
  CCLS site includes information for practioners and patients and a directory of New Zealand contact lens specialists.
  
  
• Crohn's and Colitis Support Group (CCSG)
  A voluntary organisation, the Crohn's & Colitis Support Group provides information and support to individuals and medical professionals on Crohn's disease and ulcerative colitis. Includes a newsletter, other publications, a bulletin board, and links.
  
  
• Crying over spilt milk : Gastric Reflux Support Network NZ for Parents of Infants & Children Charitable Trust
  Gastric Reflux Support Network New Zealand for Parents of Infants & Children Charitable Trust (GRSNNZ) site. Information and advice from a variety of sources about gastric reflux disease in children. Includes a discussion board.
  
  
• Cystic Fibrosis Association of New Zealand
  CF Association is the only national organisation dedicated to all aspects of Cystic Fibrosis. Provide information about the disease and the association, news, events, grants and awards and link to online newsletter.
  
  
• Daffodil Day / Cancer Society
  Promotes the Cancer Society's annual Daffodil Day fundraising event. Includes downloadable resources and media kit.
  
  
• Deaf Aotearoa New Zealand = Te Roopu Turi o Aotearoa
  About DANZ, a not-for-profit organisation which promotes Deaf culture, New Zealand Sign Language and the interests of the Deaf community. Includes contact details for local branches and online newsletter.
  
  
• Deaf Sports Federation of New Zealand
  About the association and the services and support it offers; includes information on the Australian Deaf Games.
  
  
• Diabetes New Zealand
  Website of a charity that represents people with diabetes. Contains information on the condition, including causes and treatment, management, nutrition, and products. Includes sample articles from the current issue of Diabetes magazine, general resources, and news.
  
  
• Digest / Disability Information Service
  The Digest is published quarterly by the Dunedin Disability Information Service. It provides free disability and health related information to the Otago region. Includes information about courses and events. it is supplemented by a fortnightly update. Issues are available in fulltext.
  
  
• Disabilities Resource Centre Trust = Te Whakaipurangi Haua
  About the Trust and the services it offers to disabled people in the Eastern Bay of Plenty. Event calendar is included.
  
  
• Disability funding info
  Provides information about Ministry of Health funding for people with disability related needs. This funding is available for specialised equipment, housing modifications, vehicle purchase, vehicle modifications and driving assessments.
  
  
• Disability Information Service Inc., Christchurch, N.Z.
  Site of the Disability Information Service, a free community information service in the Canterbury Region. Provides brief explanation of services offered and range of resources available. Includes contact details and opening times.
  
  
• Disability Information Service Inc.
  The Disability Information Service provides free disability and health related information to the Otago region. Includes information about services and support for people with disabilities, current projects, an online directory of health and disability related groups in Otago, a directory of accessible accommodation in Otago, a resource catalogue, and online newsletters Digest, and Fortnightly update.
  
  
• Disability Services newsletters
  Newsletters published by the Ministry of Health's Disability Services Directorate, covering issues affecting people with disabilities in New Zealand. Full text of each issue is available in PDF format; issues are also available in print or by email.
  
  
• Disabled snowsports New Zealand : DSNZ
  Includes information about athletes; adaptive equipment; how to become involved; training camps; regional contacts; events calendar and sponsors.
  
  
• Donald Beasley Institute for research & education on intellectual disability
  Promotes and carries out applied research in the area of intellectual disability and aims to educate everyone involved about current knowledge and philosophies relating to people with intellectual disabilities.
  
  
• DPA New Zealand
  Represents people with disabilities, the organisations involved in advocacy on their behalf, and service providers. In addition to information about DPA and its activities, the site includes the full text of newsletter, Bites; press releases and annual reports.
  
  
• Dyspraxia Support Group of N.Z. Inc.
  A parent-initiated, voluntary support group for all who care for children with developmental dyspraxia. The web site includes a detailed description of dyspraxia.
  
  
• Eating Difficulties Education Network : EDEN
  Provides information about the Auckland based organisation's approach to eating issues, the services they offer, and some proactive ways of promoting body satisfaction.
  
  
• Edgar National Centre for Diabetes Research, Dunedin School of Medicine
  ENCDR promotes collaborative research into diabetes at the University of Otago and facilitates collaborative research with other New Zealand institutions and internationally. Includes information on staff, current research and publications.
  
  
• Enable New Zealand
  Organization delivers a range of services for older people and disabled people. Site provides information about services, an equipment database, the library catalogue and a journal index database. It also includes Kiwi Explorer, a means of travelling through primarily New Zealand internet resources related to disability and rehabilitation.
  
  
• Epilepsy New Zealand
  Information about Epilepsy New Zealand and the disease, together with current news and events, and links.
  
  
• Equity-for-illness
  New Zealand has two streams of health funding. ACC protects those injured by an accident; the Ministry of Health (through the agencies of Enable Funding and Accessable) is responsible for those who develop an illness. Equity-for-illness aims to see the Ministry of Health funding brought into line with current ACC entitlements.
  
  
• FADE
  The Foundation for Alcohol and Drug Education (FADE) provides alcohol and drug services for New Zealanders in educational institutions, communities, workplaces and prisons. Services include education, training and resources.
  
  
• Fertility NZ
  FertilityNZ is the public identity of the non-profit organisation, New Zealand Infertility Society, formed in 1990. Committed to promoting the well being and welfare of all people with fertility problems. The web site includes information about the Society, local groups and events, issues, pamphlets and the newsletter Pathways.
  
  
• Gambling Helpline New Zealand
  Services of the GPH. Site also has resources about problem gambling for gamblers and their families, how to identify compulsive gambling behaviours, recent Gambling Problem New Zealand newsletters and an online forum. Specialist help lines for for Māori, Pacific Island people and young people are listed.
  
  
• Gamblingwatch.org.nz : a website providing info and help for communities facing gambling expansion
  Links to sources of information about gambling in New Zealand and help available for problem gamblers. Includes newsletter.
  
  
• Genesis Oncology Trust
  Describes the Genesis Oncology Trust and its work to fund prevention, detection, diagnosis and treatment of cancer. Includes information about making donations, applying for grants, and downloadable annual reports.
  
  
• GiveLife.org.nz : campaign for an effective organ donor system
  Site discusses the current organ donor situation in New Zealand and provides link to transplant coordination service.
  
  
• Glaucoma New Zealand
  Glaucoma NZ is a non-profit organisation which aims to provide education, public awareness and research into glaucoma. The site includes information about both the disease and the organisation.
  
  
• Goalball New Zealand
  GNZ site about goalball, a hand-ear coordination game which is now a Paralympic sport.
  
  
• Haemophilia Foundation of New Zealand Inc. : HFNZ
  Official website of HFNZ. Includes an organisational profile, FAQ's, the Foundation's newsletter, Bloodline, events calendar and kids corner.
  
  
• Head Injury Society of New Zealand home page = Te Roopu O Aotearoa Kua Whakaturia Hei Whakahaere I Nga Take E Pa Ana Mo Era Mate O Te Mahunga
  The Head Injury Society of New Zealand's site aims to provide basic information for people who are newly introduced to brain injury by the injury or illness of a friend or relative. The site is also a link between industry professionals. There are New Zealand and overseas e-mail sections to encourage contacts, and links to related websites.
  
  
• Health Workforce Advisory Committee = Kōmiti Taunaki Kaimahi Hauora
  The role of the HWAC is to advise the Minister of Health on health workforce issues that the Minister specifies by notice to the Committee. The web site includes publications in PDF format.
  
  
• Hearing Association Inc. New Zealand
  In addition to information about the Association and products, including hearing aids, the site provides information about hearing.
  
  
• Hearing Dogs for Deaf People New Zealand
  This site provides news and information about the organisation, fundraising and the dogs.
  
  
• Heart Children New Zealand Inc.
  Heart Children New Zealand's mission is to provide and facilitate the best support and care for children with congenital heart disease and their families. The site provides: information on the services provided by the organisation, and on the facilities at Greenlane Hospital and the BNZ Heart House; resources including its newsletters and links to related websites; profiles of, and artwork and stories by heart children; and a list of frequently asked questions with answers.
  
  
• Heart Foundation
  The National Heart Foundation of New Zealand funds research and promotes heart health in order to reduce the rates of cardiovascular disease in New Zealand. The site includes information on its research and education programmes, its resources, events and news. Also contains information on heart health and nutrition. Includes online publications.
  
  
• Heart life : newsletter of the National Heart Foundation of New Zealand
  Newsletter covers the work of the Heart Foundation in the community and provides information about upcoming events and programmes. All issues available in full-text.
  
  
• Hepatitis Foundation
  In addition to information about the Foundation and its services, the site provides information about hepatitis B and hepatitis C. A list of resources and links is also included.
  
  
• Hepatitis-C Support Group of New Zealand
  Information about hepatitis-C and the support group.
  
  
• Hohepa
  Describes the work and values of the organisation which provides residential, recreational and vocational support for adults with developmental / intellectual disabilities throughout New Zealand with information about the regional organisations.
  
  
• Huntington's Disease Associations of New Zealand : Auckland, Wellington and Christchurch
  This web site describes the three New Zealand Huntington's disease associations and their services. It also includes information on the disease and resources.
  
  
• Huntington's news : the quarterly newsletter of the Huntington's Disease Associations of New Zealand
  Selections of articles taken from Huntington's News and made available on the Association's website, The Huntington's Disease Scene in New Zealand.
  
  
• IHC in your community
  The web site provides information about IHC, but is primarily a resource on intellectual disability. It includes information on intellectual disability at various life stages, a database of syndromes & conditions, information on advocacy, a monthly advocacy ezine, Hot Issues, and an online library catalogue.
  
  
• Immune Deficiencies Foundation of New Zealand
  Offers support to children, teenagers and adults with diagnosed primary immune deficiency disorders. Includes information about the organisation and the disorders, stories of people with primary immune deficiencies, newsletters in PDF format, details of events, and links.
  
  
• Immunisation Advisory Centre
  IMAC is based at the University of Auckland. Site provides information for parents and caregivers as well as health professionals. Online publications.
  
  
• In ya face : Youth Gambling Helpline
  Site targeted at youth which is part of the National Gambling Helpline. Presents information about gambling and problem gambling and offers support services.
  
  
• Interactionz : empowering lifestyles = Tari Whakawhitinga : atamai whakatinanatanga
  About the charitable trust and the services it offers to disabled people in Hamilton.
  
  
• Interdisciplinary Trauma Research Unit
  ITRU research unit, at the Faculty of Health AUT, aimed at gaining an understanding of the human experience of trauma. Contains research activities, publications, news and events.
  
  
• IRONZ : New Zealand Haemochromatosis Support & Awareness Group
  Offers support, information and encouragement, through the group process to individuals with haemochromatosis. Includes information about the organisation and links to other sites.
  
  
• Kidney Kids
  A parent driven organisation, set up to meet the needs of parents of children who have kidney disorders. In addition to information about the organisation, the web site includes stories about children with kidney disease, renal information and links, guides to life, an events album and details about the annual camp.
  
  
• Kids Foundation
  The welfare arm of the Immune Deficiencies Foundation of New Zealand. In addition to information about the foundation and the disorders, the web site includes stories of people with primary immune deficiencies, newsletters in PDF format, details of events, and links.
  
  
• La Leche League New Zealand
  Offers breastfeeding information and support.
  
  
• Laura Fergusson Trust (Auckland) Inc.
  A charitable trust for disabled persons which provides a range of services and facilities tailored to meet the specific needs of clients with physical disabilities.
  
  
• Learning & Behaviour Charitable Trust NZ
  Information and resources for people with learning (dyslexia or attention deficit hyperactivity disorder (ADHD)) and attention difficulties.
  
  
• Let's beat diabetes : community partnerships and action in Counties Manukau
  Information on community plans and initiatives being undertaken by the Counties Manukau District Health Board to prevent or slow the progression of type 2 diabetes.
  
  
• Leukaemia & Blood Foundation
  The foundation and its work. Includes information about leukaemia and associated diseases; information about support for patients and an area for health professionals.
  
  
• LiveSmart / developed by the Cancer Society
  Provides programmes and information on healthy living with diet and exercise plans to lessen the risk of cancer. Includes a corporate health plan for work places and the latest information from cancer research. Information is found under separate pages for: LiveSmart, MoveSmart, EatSmart, GrowSmart and StaySmart.
  
  
• Lupus Care & Support
  About the society and the disease. Includes articles by experts in the field.
  
  
• Lupus Trust of New Zealand
  Lupus is a chronic auto-immune disease which causes inflammation of various parts of the body. The site provides support and information on this condition and its history. Site began with title Lupus Auckland, but in 2002 name was changed to Lupus Trust of New Zealand.
  
  
• Lysosomal Diseases New Zealand
  LDNZ is a support network for sufferers of Lysosomal Storage diseases and their families. Includes information about the diseases, links to personal stories, research information, support groups and industry information.
  
  
• M.E./CFS Group
  Information on myalgic encephalomyelitis or chronic fatigue syndrome and the Canterbury region support group.
  
  
• Malaghan Institute of Medical Research : MI
  Information about the Malaghan Institute's biomedical research into cancer, asthma, arthritis, multiple sclerosis and infectious diseases.
  
  
• Manufactured food database
  A database of foods free from wheat, gluten, egg, peanuts, soya, legumes and milk/lactose. Also includes low lactose foods. Previously the New Zealand therapeutic database.
  
  
• Meningococcal B : be wise, immunise
  Information to help people make an informed choice about getting the MeNZB vaccine. Available also in Māori, Pacific languages, Hindi, Korean and Chinese.
  
  
• Meningococcal disease update / Ministry of Health
  Meningococcal Disease Update is published by the Ministry of Health and provides information on the incidence of meningococcal disease in New Zealand. Issues are available in full-text.
  
  
• Migraine Sufferers Support Group
  MSSG aims to provide information about all aspects of migraine. In addition to full text patient information, the web site includes a forum for members.
  
  
• Miscarriage Support Auckland Inc.
  Miscarriage Support Auckland is a team of volunteers of various ages who have all experienced the loss of our own babies and would like to give others emotional support.
  
  
• Motor Neurone Disease Association NZ
  MNDANZ site primarily for carers, family and friends of people with MND. About the disease and services available to those with the condition. Newsletter available online with back issues.
  
  
• MS voice : Multiple Sclerosis Society of New Zealand Incorporated quarterly publication
  Covers research, events and news in the Multiple Sclerosis (MS) community in New Zealand and overseas. Issues available in full-text.
  
  
• Multiple Sclerosis Society of Auckland = Te Ropu Roro Tapepe o Tamaki-Makau-rau
  Information about the Society and multiple sclerosis.
  
  
• Multiple Sclerosis Society of New Zealand
  Information about multiple sclerosis and living with the disease in New Zealand. Resources available online. Information also about MS New Zealand (MSSNZ). Font on site can be adjusted to larger size.
  
  
• Narcotics Anonymous : welcome to the Aotearoa New Zealand regional website of Narcotics Anonymous
  Information about NA's work to help drug addicts recover, including a listing of events and meetings, and some downloadable resources.
  
  
• National Health Committee : National Advisory Committee on Health and Disability
  The National Health Committee was established by statute to advise the Minister of Health on the kinds and relative priorities of public health services, personal health services and disability services that it believes should be publicly funded. The site provides information about the Committee, its work programme, and a list of online publications. Information on the Public Health Advisory Committee and a link to the site of the New Zealand Guidelines Group is also available.
  
  
• National Heart Foundation. Become a heart racer
  The heart racer programme sponsored by the Heart Foundation to promote exercise and raise funds for heart disease research, contains enrolment forms for becoming or sponsoring a heart racer.
  
  
• National Research Centre for Growth and Development
  Information on National Research Centre for Growth and Development (NRCGD), a government sponsored Centre that focuses on research into growth and development and their effects on human and pastoral biology and disease. Lists research projects.
  
  
• Needle Exchange Programme
  Needle Exchange in New Zealand is offered on the basis of user-pays. This means that, unlike other countries where the service is free, drug-users must buy new injection equipment.The site includes information on how the programme works, outlets, harm reduction, types of drugs, safer injection, tolerance and addiction, help with addiction, home detox, safer sex, hepatits and HIV/AIDS.
  
  
• Neuromuscular Alliance : for people living with neuromuscular conditions = mō te hunga whai organa i te mānuka-uaua
  About NMA and its activities and information about the conditions covered by the alliance.
  
  
• New Zealand Addison's Network
  NZAN provides information about Addison's disease, and support services available. Includes downloadable resources and a newsletter, news and events, and personal stories.
  
  
• New Zealand Association of Orthodontists
  NZAO site includes information about orthodontic treatment and a register of orthodontists.
  
  
• New Zealand Audiological Society
  This site covers all topics related to audiology including research, news, events, information, and advice..
  
  
• New Zealand Cancer Control Trust
  Trust formed through funding from the Cancer Society of New Zealand and the Child Cancer Foundation for the development of a national cancer control strategy for New Zealand. Links to items published in relation to the strategy.
  
  
• New Zealand Continence Association
  The NZCA was established to provide a service to people whose lives are affected by bladder or bowel continence problems, their caregivers, health professionals and the general public by providing information and education on continence topics. The web site includesinformation about continence problems, specialists and products.
  
  
• New Zealand DermNet
  Site of the New Zealand Dermatological Society. Dermnet aims to provide authoritative information about the skin for health professionals to assist in diagnosis and treatment and general information for patients with skin diseases. Site accessible for both medical (both dermatologists and GPs) and non-medical persons. Much use of colour graphics. Provides information but not consultation.Includes directory of New Zealand dermatologists and international links to journals, institutions and commercial bodies such as drug manufacturers. Includes contact information for the DermNet Development Group.
  
  
• New Zealand Down Syndrome Association
  NZDSA is a national organisation offering support to parents/caregivers of Downs Syndrome children. Includes chatroom and newsletter.
  
  
• New Zealand Endometriosis Foundation Inc.
  The New Zealand Endometriosis Foundation Inc. and its support network offer education, information and support for girls and women with endometriosis and others interested in this disease. In addition to information about the Foundation and the disease, the web site offers details of publications for purchase and an educational programme suitable for senior secondary school and tertiary students.
  
  
• New Zealand Herpes Foundation
  The New Zealand Herpes Foundation was founded in response to the need to provide support and education to people diagnosed with genital herpes. Patient information includes: Facts, Recognising genital herpes, Treatment, How to tell your partner, Information for partners, and Herpes in pregnancy. Information is also available on other reading and where to go for help. Health professionals can download medical management guidelines and a Powerpoint presentation.
  
  
• New Zealand HPV Project
  The objectives of HVP are: to provide up-to-date information and non judgmental support to people with genital warts; to provide health and medical professionals with user-friendly educational material that will assist with the diagnosis, treatment and management of genital warts; to educate the public about the prevalence, transmission and management of genital human papillomavirus. Resources for patients and health professionals are available in PDF format.
  
  
• New Zealand Kidney Foundation
  Information about the Foundation, kidney health and disease, organ donation. Includes online brochures, fact sheets, a newsletter, recipes, contact details for regional support groups, mobile dialysis units.
  
  
• New Zealand liver transplant recipients website
  Information and factsheets on the liver and and the transplant process. The site contains the stories from recipients, caregivers and donor families.
  
  
• New Zealand Pain Society Inc.
  The society aims to improve the management of patients with acute and chronic pain.
  
  
• New Zealand Rheumatology Association
  The New Zealand Rheumatology Association's site is intended to help facilitate communication between members of the NZRA, and improve public understanding of arthritis. It has a closed members section but apart from this there is extensive information available. It includes: directories, a glossary, patient and drug information, and rheumatology links.
  
  
• New Zealand Riding for the Disabled Association Incorporated
  New Zealand RDA site. Information site for riders and volunteers, therapy information and contact details for regional groups. Includes an online newsletter.
  
  
• New Zealand Sign Language Week = Wiki o te Reo Rotarota o Aotearoa
  NSLW site provides a background to sign language in New Zealand, including its history, where to go to learn it, and with some examples of the language.
  
  
• New Zealand Speak Easy Association Inc : Speak Easy a support group for people who stutter
  About Speakeasy and its services. Includes information on therapy and tips for parents.
  
  
• New Zealand Spinal Trust
  Provides advice on supporting independent living and improving the quality of rehabilitation for people who have spinal cord impairment (SCI). Includes information on vocational rehabilitation, educational resources, current research, advocacy and the Allan Bean Centre at Burwood Hospital.
  
  
• NFD : the National Foundation for the Deaf Incorporated
  Describes the Foundation, Deaf Awareness Week and other activities. Provides information on hearing, hearing impairment and helpful organistions. Also includes frequently asked questions, articles from Vibrations newsletter and policy updates.
  
  
• NZ Eating Disorder Specialists : home page
  NZEDS site has information about the Auckland clinic and the services it offers as well as information about eating disorders for both patients and GPs.
  
  
• NZORD because rare disorders need understanding and treatment
  The New Zealand Organisation for Rare Disorders web site is the central starting point for information about rare diseases and networks available in New Zealand. Specific features are available for people with visual impairment, and for those who prefer to use the keyboard rather than a mouse to surf through the web site.
  
  
• Office for Disability Issues : administered by the Ministry of Social Development = Te Tari Mō Ngā Take Hauātanga
  Aims to help bring about the vision of the NZ Disability Strategy. Site includes information about the office and the strategy and resources.
  
  
• Outlook : the magazine of the Royal New Zealand Foundation of the Blind
  Outlook is published by the Royal New Zealand Foundation of the Blind. Outlook includes articles on government policy relating to blindness, profiles of members in the news, interesting fundraising events, donor stories, news from Guide Dog Services, guide dog team profiles and other stories. Issues are available in full-text.
  
  
• P.A.T.H.S. : Post Abortion Trauma Healing Service
  Information site which offers insights into life after abortion, the possible effects and impacts on people and their relationships.
  
  
• Pacific Leprosy Foundation
  Information about the Pacific Leprosy Foundation, including the goals, structure and history of the foundation, and its current work in Fiji, Vanuatu, Samoa, Tonga, Cook Islands, Solomon Islands, Kiribati, New Zealand and Vietnam. Includes access to the Journal of the Pacific Leprosy Foundation and an online newsletter.
  
  
• Parafed Canterbury : dedicated to helping people with disabilities
  Parafed Canterbury was set up to help rehabilitate people with a physical disability using sport and recreation, as well as information. The site describes their activities and programmes.
  
  
• Paralympics New Zealand
  Introduces PNZ, the national sports organisation for disabled athletes. Contains information on the Paralympic Games, including resources for schools.
  
  
• Parent to Parent New Zealand
  Parent to Parent is a support and information network for parents of children with special needs. Support is provided voluntarily by trained support parents who have a child with the same or similar needs.
  
  
• Parents of vision impaired NZ
  P.V.I. site for parents of vision impaired children. Information and advice from a variety of sources and online newsletter.
  
  
• Parkinsonian : the quarterly magazine of the Parkinsonism Society of New Zealand Incorporated
  The Parkinsonian is published by the Parkinsons New Zealand, and includes information on Parkinsons disease. Issues are available in full-text.
  
  
• Parkinsons New Zealand : the Parkinsonism Society of New Zealand (Inc.)
  Information about Parkinsons disease and the society.
  
  
• People First New Zealand
  People First is run by and for people with intellectual disabilities. It is where people with disabilities learn to speak up for themselves and for their friends. Includes newsletter published every three months.
  
  
• Pete's blindness page
  Directory of useful web sites for blind people in a format suitable for alternative browsers. Also includes a page of Peter McGlinchey's personal experiences and travel tales.
  
  
• Plunket : caring for young families = Whānau āwhina
  Information about Plunket and the support services it supplies to families with children under the age of five, including PlunketLine.
  
  
• Podiatry @ home
  In addition to information about services provided by Julie Winder, the site includes brochures (in PDF format) and other information about common foot problems.
  
  
• Prader-Willi Syndrome Association
  The PWS Association (NZ) Inc is a support group for those who have the syndrome, their families, and all who come in contact with PWS. The web site includes an overview of PWS, diagnostic guidelines for parents and professionals, and information on genetics, management, schooling and sexuality. Articles are available in full text and details are given for ordering publications, some free.
  
  
• Pregnancy Help : confidential support for women and their families
  Pregnancy Help assists women who are or have recently been pregnant, their families/whanau.
  
  
• Problem gambling : our communities, our families, our problem
  Health Sponsorship Council site providing information to raise awareness about problem gambling.
  
  
• Problem Gambling Foundation of New Zealand = Te Rōpū Āwhina Mate Petipetio Aotearoa
  About the foundation and the services they offer. Includes publications and articles.
  
  
• Prostate Cancer Foundation of New Zealand
  PCF site provides information on prostate cancer; the risk; how checks are made; what happens after the tests; and the treatment. Lists contacts in New Zealand areas, and recommends books to read. Also includes news; recent articles and newsletter.
  
  
• Report / the Fred Hollows Foundation NZ
  Newsletter of the Fred Hollows Foundation, which works to ensure access to affordable eye care and health, in the developing countries of the Pacific region. All issues available in full-text.
  
  
• Retina New Zealand Inc. : fighting blindness
  Retina New Zealand Inc, formerly known as the New Zealand Retinitis Pigmentosa Society, provides information on the cause, prevention and treatment of retinal degenerative disorders. Site offers regularly updated information accessible through magnification software and speech synthesis for people with retinal dystrophies.
  
  
• Richmond Fellowship New Zealand Inc.
  The Richmond Fellowship New Zealand Incorporated is a national provider of community-based services supporting people who have mental health and social needs. Site includes RASIN (Richmond Fellowship Adult Services, South Island Newsletter) from July 2002.
  
  
• Rotorua ME/CFS Charitable Trust
  Non-profit group established to provide support and resources, provide educational material and run seminars.
  
  
• Royal New Zealand Foundation of the Blind = Te Tuāpāpā o te Hunga Kāpō o Aotearoa
  Provides services and resources for the many blind and partially sighted people in New Zealand. The site includes access for members to the Foundation's computer network, as well as free access to its publications.
  
  
• Second-hand smoke in New Zealand
  Facts about the dangers of second-hand smoke, includes fact sheets and reports and details about the Government's media campaigns.
  
  
• Secretariat of the Pacific Community public health programme
  Comprehensive coverage of public health programmes in the South Pacific. Covers information on diseases and epidemics, with separate sections for HIV/AIDS and Tuberculosis. Also section on healthy life style choices. Includes news, and events, conferences, and publications.
  
  
• SIDS New Zealand
  Provides up-to-date information and resources for parents and families on Sudden infant death syndrome. Includes news, access to resources and case histories.
  
  
• Special Education
  Special Education (also referred to as GSE) is a group in the Ministry of Education focused on providing services - directly and indirectly - to children and young people with special education needs. Provides information on government policy and gives links to local services and contacts.
  
  
• Special Olympics New Zealand
  Special Olympics New Zealand offers programmes of sports training and competition for people with an intellectual disability. The site includes information on volunteering for Special Olympics, trainings offered and sports rules.
  
  
• Spinal Cord Society New Zealand
  Provides information on research facilities in New Zealand for improving the quality of life of spinal cord impaired persons.
  
  
• Stroke Foundation of New Zealand
  A network of over 40 Field Officers and 100 Stroke Clubs throughout New Zealand, which provides information, understanding, care, support and rehabilitation to help people with a stroke, their families and caregivers to regain the best quality of life they can. The web site includes information about the Foundation and strokes. Some guidelines for health professionals are available in PDF format.
  
  
• SunSmart in New Zealand
  Provides Information on being sun smart. Includes facts and figures on Cancer in New Zealand.
  
  
• Support options : a guide to disability resources in Auckland and Northland, New Zealand
  Provides a guide to services provided to the region by the Disability Services Directorate of the Ministry of Health. Includes a comprehensive directory of service providers. Also provides information and links to both Government and non-Government departments and disability organisations providing funding and support within the disability sector in New Zealand.
  
  
• Supporting Families in Mental Illness New Zealand
  A voluntary organisation for the support and education of people affected by schizophrenia. Contact details for branches, faqs, family rights, resources, newsletter.
  
  
• Tiaho
  Tiaho Trust provides support to, and lobbies on behalf of people with disabilities in Northland. The site includes an events and news section, a space in which people with disabilities can showcase their artwork, and information on support organisations in the region. Includes online publications.
  
  
• Totara Park Riding for the Disabled
  Totara Park RDA is affiliated to New Zealand Riding for the Disabled (NZRDA) and lists websites of other New Zealand RDA groups. Site includes information about the horses; how to volunteer; funding and newsletters.
  
  
• Transplantation Society of Australia and New Zealand, Inc
  The Transplantation Society of Australia and New Zealand has as members, scientists, doctors, transplant coordinators and research students with an interest in all forms of transplantation of organs. The site features; society news and courses, protocols, xenotransplantation and related links.
  
  
• Trauma and birth stress, PTSD after childbirth
  A charitable trust support group for mothers suffering from PTSD a form of mental illness that can happen following stressful and traumatic pregnancies or births.
  
  
• Van der Veer Institute for Parkinson's & Brain Research
  The Institute is a partnership between the Christchurch School of Medicine and Health Sciences of the University of Otago, the University of Canterbury, the Canterbury District Health Board, and the Canterbury Medical Research Foundation. The now disestablished Christchurch Brain Research Group was a precursor to, and a platform for, the Institute. Activities centre around brain research and the clinical care of patients with Parkinsons disease and other movement disorders. The web site provides abstracts of research projects, and publications by Group members.
  
  
• Vascular.co.nz
  Aimed at the layman, the site describes vascular diseases and their management. Includes online publications.
  
  
• Weka : what everybody keeps asking about disability information
  New Zealand internet resources related to disability and rehabilitation. Links to information about practical living issues, disabilities and diseases, resources for Māori, support services and library resources, as well as news, national events and disability equipment. Provides a full text search or search by category.
  
  
• Wellington ME/CFS Support Group
  The Wellington ME/CFS Support Group has been set up to help all those living in the Wellington area who suffer from chronic fatigue syndrome or myalgic encephalomyelitis. Copies of the newsletter are available on the site which also includes details about the group and available resources.
  
  
• What funding support is available?
  Information for clients and employers about funding and assistance available to help people with disabilities to get back to work. Includes information about Kaleidoscope, the early intervention vocational rehabilitation programme for people with disabilities.
  
  
• Www.hearwell.co.nz : for all your hearing needs
  Site of the Hearing Association Wellington. Services, question and answer forum and online shop.